Introducing:

The Group Project.

This isn’t just community - it’s a collective. Each month, we’ll come together to turn our experiences into action. From sharing our stories, to shaping research, contacting legislators, and pushing for better care, this is where individual voices become collective power. This month, we’re inviting you to take part in a patient-led survey and share your story. This will help us turn lived experience into data and momentum for change.

Take the Survey

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Who We Are

Built by women who have lived it, I Am Endometriosis is more than a community — it’s a movement. We turn pain into power, stories into advocacy, and community into change.

Here, pain is believed and stories are honored. No one should have to navigate this disease alone, and we are creating a space where they don’t have to.

Together, we are raising awareness, advancing education, and advocating for the research and care that people with endometriosis deserve. Because when our experiences are seen, shared, and taken seriously, change becomes inevitable.

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